Frequently Asked Questions about XLH Community Connections
What can I expect from attending a Community Connections Day?
Community Connections Days are an opportunity for people living with XLH to meet other families in their area. The goal is to bring together patients, doctors, and other service providers within a region. There will be time for education, networking, and socializing. There will also be children's activities, so there is something for everyone.
How are these different from XLH Day?
While there are many similarities between our XLH Day programming and our Community Connections Day, the difference is that these events are smaller, more localized, and only one day, allowing us to provide more of them annually and in more locations.